NCSA 2026 Family Caregiver Survey, Part 2

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Welcome to the 2026 NCSA Family Caregiver Survey, Part 2

Part 1 asked questions that let us compare families of people with severe autism with broader caregiver populations. Part 2 asks what is rarely, if ever, collected for any population: who provides the care, who trains and manages the workers, what a lost person can communicate, and what happens when a family asks for help. About 10 to 15 minutes.

You can take Part 1 and Part 2 in any order, but both are critically important to NCSA's 2027 advocacy with Congress, so we ask that, if at all possible, every family caring for someone with severe autism complete both. You can save and come back later. Your personal information will never be shared, so answer as honestly as you can.

As in Part 1, if you care for more than one person with severe autism, answer about the oldest person with severe autism you care for.

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